Medical Tribune
Advancing Care in Rare Diseases: Systemic Treatment Options in Neurofibromatosis Type 1 – Plexiform Neurofibroma and Desmoid Tumor

Webinar

Advancing Care in Rare Diseases: Systemic Treatment Options in Neurofibromatosis Type 1 – Plexiform Neurofibroma and Desmoid Tumor

17. Sept. 2026
17:00 - 19:00
online
Eine Anmeldung zu dieser Veranstaltung ist nicht mehr möglich

During the training session, participants will have the opportunity to ask the Speakers questions via the chat.

If you are having any problems logging in, please feel free to contact us at mtch-support@medtrix.group and we will be happy to help you or register you for the webinar.

Speakers

Prof. Dr. med. Thorsten Rosenbaum
Consultant in Pediatrics and Adolescent Medicine, Subspecialty in Pediatric Neurology; Certified in EEG and Epileptology, Sana Kliniken Duisburg
PD Dr. med. Said C. Farschtschi
Head of the Phakomatoses Section, Head of the Neurofibromatosis Outpatient Clinic and Day Clinic, Consultant Neurologist, Hamburg
Prof. Dr. med. Bernd Kasper
Professor of Medicine; Medical Director of the Mannheim Cancer Center (MCC), University Medical Center Mannheim, Heidelberg University; Specialist in Internal Medicine, Hematology and Medical Oncology.

Programm

17:00
17:05
Welcome and Introduction
17:05
17:35
NF1-PN in Children: From Diagnosis to Treatment — What’s the new path forward with Ezmekly® (mirdametinib)?
(Prof. Dr. med. Thorsten Rosenbaum)
17:35
18:00
How should transitioning care and treatment be managed for adult NF1-PN patients?
(PD Dr. med. Said C. Farschtschi)
18:00
18:15
NF1-PN — Discussion
18:15
18:45
Desmoid Tumors: From Disease to Treatment — What role does Ogsiveo® (nirogacestat) play?
(Prof. Dr. med. Bernd Kasper)
18:45
19:00
Desmoid Tumors — Discussion & Close
We are able to hold this webinar thanks to the generous support of Merck.
Merck Logo